I was determined to make it a year without a relapse of Neuromyelitis Optica. I’m not convinced at all that determination has anything to do with when my spinal cord […]
So that’s a 14 hour wait for treatment. 14 hours of my immune system attacking my spinal cord. 14 hours of inflammation leading to permanent damage of nerves – the nerves that help me walk, see, urinate, breathe. NMO causes permanent disability. NMO can kill.
“Don’t film me looking disabled.” Those weren’t my exact words, I said “Do you have to film me walking up the stairs?” but I only said it because I think […]
So what do you do when the tables are turned? When you are the one struggling to cope? When you are the one needing help? When you could do with a wish?
My naked arse was protruding from a hole in a plastic chair and there was a strange man in the room. He wore a red bow tie and I could see his nipples through his shirt.
I’ve never felt more suffocated than when surrounded by the crotches of 30 hungry tourists.
Blue orchids. The moony whites of her smiling eyes in the darkness. My reflection in the back of a teaspoon. Words, making their way to the yellow-tinged edge of the […]
6 months ago I moved to Scotland and the idea was that my medical notes would come with me detailing various test results and specialists appointments and referrals and medications […]
The hardest part of having a chronic illness is not the pain, it’s not the fatigue or the worry, or the medical bills or the medication – it’s the smiling and pretending to […]
I often daydream about not being ill. As months are turning into years I don’t want to forget what it feels like to be healthy. I fear if I lose […]