I was determined to make it a year without a relapse of Neuromyelitis Optica. I’m not convinced at all that determination has anything to do with when my spinal cord […]
So that’s a 14 hour wait for treatment. 14 hours of my immune system attacking my spinal cord. 14 hours of inflammation leading to permanent damage of nerves – the nerves that help me walk, see, urinate, breathe. NMO causes permanent disability. NMO can kill.
“…it’ll be nice to be reversed into a tube not much bigger than myself, a tube that can rip metal from your insides and SEE INSIDE YOUR BRAIN. ”
Blue orchids. The moony whites of her smiling eyes in the darkness. My reflection in the back of a teaspoon. Words, making their way to the yellow-tinged edge of the […]
When my rheumatologist sat down, took a deep breath and asked me how my childhood was, I thought he’d lost the plot. “Well,” I answered, “Good, really. Mum, Dad, Brother, Pets. […]