I was determined to make it a year without a relapse of Neuromyelitis Optica. I’m not convinced at all that determination has anything to do with when my spinal cord […]
So that’s a 14 hour wait for treatment. 14 hours of my immune system attacking my spinal cord. 14 hours of inflammation leading to permanent damage of nerves – the nerves that help me walk, see, urinate, breathe. NMO causes permanent disability. NMO can kill.
Sometimes you don’t know what it is that’s been missing until you’re crying with relief in your kitchen after a day filming with BBC 3.
We laid face to face on the sofa, as we often do. I was trying to explain how it feels knowing how to skip, but not being able to make […]
I recently joined the Scottish Green Party and attended my first branch meeting in Stirling. Patrick Harvie (co-convenor) spoke to the branch about a range of issues, but two things […]
I’ve never felt more suffocated than when surrounded by the crotches of 30 hungry tourists.
It’s incredibly hard to explain to someone who hasn’t been paralysed just exactly what it feels like.
Blue orchids. The moony whites of her smiling eyes in the darkness. My reflection in the back of a teaspoon. Words, making their way to the yellow-tinged edge of the […]
6 months ago I moved to Scotland and the idea was that my medical notes would come with me detailing various test results and specialists appointments and referrals and medications […]
The hardest part of having a chronic illness is not the pain, it’s not the fatigue or the worry, or the medical bills or the medication – it’s the smiling and pretending to […]