I was determined to make it a year without a relapse of Neuromyelitis Optica. I’m not convinced at all that determination has anything to do with when my spinal cord […]
So that’s a 14 hour wait for treatment. 14 hours of my immune system attacking my spinal cord. 14 hours of inflammation leading to permanent damage of nerves – the nerves that help me walk, see, urinate, breathe. NMO causes permanent disability. NMO can kill.
“…it’ll be nice to be reversed into a tube not much bigger than myself, a tube that can rip metal from your insides and SEE INSIDE YOUR BRAIN. ”
Sometimes you don’t know what it is that’s been missing until you’re crying with relief in your kitchen after a day filming with BBC 3.
My naked arse was protruding from a hole in a plastic chair and there was a strange man in the room. He wore a red bow tie and I could see his nipples through his shirt.
It’s incredibly hard to explain to someone who hasn’t been paralysed just exactly what it feels like.
Blue orchids. The moony whites of her smiling eyes in the darkness. My reflection in the back of a teaspoon. Words, making their way to the yellow-tinged edge of the […]
I let the MRI Machine of Certain Death consume me and whiled away the following hour of clicks and buzzes and whirring, wondering where the paralysis would stop. How long until my arms are numb?