I was determined to make it a year without a relapse of Neuromyelitis Optica. I’m not convinced at all that determination has anything to do with when my spinal cord […]
So that’s a 14 hour wait for treatment. 14 hours of my immune system attacking my spinal cord. 14 hours of inflammation leading to permanent damage of nerves – the nerves that help me walk, see, urinate, breathe. NMO causes permanent disability. NMO can kill.
“Don’t film me looking disabled.” Those weren’t my exact words, I said “Do you have to film me walking up the stairs?” but I only said it because I think […]
“…it’ll be nice to be reversed into a tube not much bigger than myself, a tube that can rip metal from your insides and SEE INSIDE YOUR BRAIN. ”
Sometimes you don’t know what it is that’s been missing until you’re crying with relief in your kitchen after a day filming with BBC 3.
We laid face to face on the sofa, as we often do. I was trying to explain how it feels knowing how to skip, but not being able to make […]