Fibromyaligia : Cheer up and go to the toilet.

6 months ago I moved to Scotland and the idea was that my medical notes would come with me detailing various test results and specialists appointments and referrals and medications and whatnot, meaning I could receive adequate medical care for my on-going health conditions – including Fibromyalgia.

The reason I’m writing this blog is because the above hasn’t happened. My notes are “lost”. “Misplaced”. “They will be ‘somewhere’…”. So for the last 6 months I’ve been back and forth to the GP getting a fortnightly prescription of Tramadol and being told to “hang on in there”.

It’s ok though because today all of my problems have been solved by my GP in one fell swoop – a miracle cure nonetheless! Do you know what my problem is? I’m depressed and constipated. Yep. That is the cause of constant muscle pain, joint pain, extreme fatigue, balance and co-ordination problems, memory blanks, feeling like the ground is constantly shaking, numb patches of skin, pins and needles in my face and tongue, shooting nerve pain, rib and chest pain, feeling like water is trickling down my legs and more. The constipation is obviously nothing to do with the fact I’m taking enough Tramadol to euthanise a small horse. The depression is not at all to do with living with the above problems and having absolutely no relief, no care and no hope.

Essentially, to cure all of my problems I just need to cheer up and a have a good shit. If only someone had told me this years ago! If only someone had pointed out this cure-all when I was 13 and struggled to write at school because my wrists were so sore. You’d have thought someone would have mentioned it when I was limping to university, my hip giving way sporadically and miraculously recovering overnight – only to be hit with it again a few weeks later. Why didn’t anyone say anything when for three weeks in Australia I could barely walk, had a mouth full of blisters and my hair was falling out? If only I’d have known that the extreme fatigue that means my partner is slowly becoming my carer could be solved so easily! All of my pain could be gone. I could have my life back!

I thought I was neglected by the NHS for the last 6 months because my notes have been lost. The truth is, I have been neglected by the NHS for 14 years because every single one of my many doctors has failed to tell me to smile and shit more. Until now.

So I’ll be on my way now – I’m going to take my double dose of anti-depressant and glug down a fybogel and I’ll see you at the other side Fibro! I’m cured!

 

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24 responses to “Fibromyaligia : Cheer up and go to the toilet.

  1. When I hear about GP’s like yours, it makes me so thankful that my GP is understanding about my fibro, depression and other illnesses.

    I would advise you to phone around other surgeries, ask if they have a GP who understands about fibro and depression, and then change GP’s.

    I hope you like living here, in bonny Scotland? I was born and live in Dundee.

    • I think a change of doctor is certainly in order!

      I’m glad you feel understood by your GP, it’s the least we can ask for – I hope your treatment is going well.

      Living in Scotland is great, I’m in Stirling and love it here.

      • Glad that you’re loving Scotland!

        I’ve just weaned myself off of Tramadol, with my GP’s knowledge, as I felt it wasn’t doing me any good now. The pain hasn’t been any worse, so I was right. I had some withdrawal symptoms, but nothing I couldn’t cope with.
        Now I just have to try another painkiller to see if I can get some relief from the never ending pain.

        The fibro charity FMA UK has an information pack specifically written for GP’s, to give them a better understanding of fibro. Perhaps it would be worth your while asking them to send one to your GP, even if you change to another one? http://www.fmauk.org/component/content/article?id=658:have-a-medical-pack-sent-to-your-gp-or-medical-professional I’m a Moderator on their forum, which is very supportive and friendly, if you like forums and are interested.

      • I know Hazel who works for FMA UK! The info pack is a good idea actually, might mean somebody in the future gets better treatment from that GP. I’ll also check out the forum.

        Well done for coming off tramadol – it’s something I’ve considered as I don’t want to be on it long term, it’s been long enough!

      • Isn’t it a small world?! I might see you around then.

        If you do decide to come off Tramadol, please do it slowly. I reduced by 50mg every fortnight. No more constipation for me now, lol! ;-D

  2. you certainly have a gift of writing. damn me but i chuckled at a “smile and shit more” … it is so true that the assumed proprietors of medical truth can be so Helpful.

  3. Hi,
    Your story is very similar to mine,complete lack of compassion & knowledge by medical profession. It got so insane that a pain specialist even laughed at me. The only thing that I can say is I will include you in my prayer (I’m not a religious freak),don’t let the fuckers grind you down,& I hope you have a record breaking shit asap 🙂

  4. Thank you for following my blog. I hope you have looked at my resources page. There are methods that do work. I think there is a tendency, understandably, to think there isn’t anything that will work because traditional doctors have been our only reality and they snort in disgust with anything remotely different. I feel for you. I wish I could take you to Dr. Tom and show you! What you experienced is so typical. It is so demeaning, condescending, and disrespectful! Hang in there!

  5. I wish I could say that I am surprised by your GP. I had one of those years ago and feel so blessed that I was able to leave him and find a Rheumatologist who listened. I also learned to never talk to my current GP about my Fibro and/or Rheumo, for they are clueless.

    • It’s sad to hear that so many people have similar stories – but I’m glad you have a good Rheumy. I hope you’re getting the treatment that you deserve and are entitled to.

      • I am known getting great care but it took two (2) years of suffering before I found my wonderful Rheumy and I wish that kind of pain on no one. I was giving nothing for the pain and sent to see a Psychiatrist. I was in such a bad head space. Thankfully my family was there to encourage me to keep looking for the right doctor. I do pray that you find your right doctor sooner then later…

  6. Hiya,
    I know I am very late replying to this and you have been through a horrific ordeal since then but I wanted to pass on a bit of information. Well 2 bits. One is that tramadol should be taken with paracetamol IF you are going to take it and feel a benefit.
    However, there is a non-opiate painkiller that still does actually relieve fibromyalgia pain. My gp did a special training course to find this out soon after I registered there and found this out, and I begged my mum’s hospital drs to prescribe it for her. They researched and prescribed it. It’s an “old” drug and non-opiate and I dont think drs think of it for that reason. And word doesnt seem to be spreading that it actually helps. Probably because no pharmaceutical company can take credit for it.
    Its called nefopam hydrochloride and you take it with paracetamol. 1- 3 tablets of nefopam 3 times a day with 2 paracetamols. So if you have a good day, just take 1. And on a flare up day you can supplement with ibuprofen.
    Its no cure, but for fm pain relief – its been a godsend.

    • I’m glad you’ve found some relief and thank you for sharing your advice. Since being diagnosed with neuromyelitis optica and receiving the right treatment my pain is more manageable. I still have pain that does not go away, but it’s okay.

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